My Kabuki Girl | A special needs journey

Non abbiamo scelto noi questa vita con sindrome Kabuki.

Ma è qui e, insieme, cercheremo di viverla al meglio.

Articoli recenti

16 ott 2024Tempo di lettura: 6 min

https://www.youtube.com/watch?v=05ZJDTViEOY&t=1s I posted a brief video taken during a physiotherapy session, where my baby girl is...

13 set 2024Tempo di lettura: 3 min

For R U Ok Day I reflect on my miscarriage and how traumas affect us at the core of our soul.

5 dic 2023Tempo di lettura: 4 min

The first hours of becoming the mum of a cardiac baby, after a long labour and caesarean, were made even worse by inappropriate nurses.

24 set 2023Tempo di lettura: 6 min

Ho deciso di esporre un reclamo all’ospedale pediatrico dopo il nostro ultimo ricovero in ospedale. Retroscena: nostra figlia Beatrice ha...

15 set 2023Tempo di lettura: 2 min

On the R U Ok Day I realised that I'm not ok. Nobody would be ok, in my shoes. I’m not ok, but I’m ok to talk about it.

20 ago 2023Tempo di lettura: 4 min

The life with a special need child feels like a Guernica life. We deal with so much, and others don't see the whole picture.

19 ago 2023Tempo di lettura: 2 min

The roller coaster of a special needs journey brings an unexpected, extraordinary silver lining.