minieDec 5, 20234 min readOf blood and milk and tearsThe first hours of becoming the mum of a cardiac baby, after a long labour and caesarean, were made even worse by inappropriate nurses.
minieSep 24, 20236 min readI complained to the hospital: this is what happenedI decided to complain to the children’s hospital after our last hospital admission. Back story: our daughter Beatrice has Kabuki...
minieSep 15, 20232 min readR U Ok DayOn the R U Ok Day I realised that I'm not ok. Nobody would be ok, in my shoes. I’m not ok, but I’m ok to talk about it.
minieAug 3, 20234 min readThe Guernica life of special needs parentsThe life with a special need child feels like a Guernica life. We deal with so much, and others don't see the whole picture.